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Crohns disease stories
I appreciate everyone who wants to share there stories. It really does help new people to this disease understand better. If you would like your story here....I will put it on here. I am not gonna pick and choose, Everyones story is amazing and you are brave for going through this disease and making it.
Send me a message on the guest book with your story or send me and email: cansforcrohns@yahoo.com
Kady
I Was diagnosed with crohns disease almost 5 years ago. It was and still is the hardest thing i have ever been through. I was 15 when i started to feel so sick at school. A sophmore just trying to get through being a teenager and i felt horrible. I slowly stopped going. My parents thought i was depressed. I felt like i was going to die. I new something else was wrong. It was depression. I went to the doctor and first found out i was 1 point away from needing a blood transfuion. The blood results revieled i was anemic. The doctor got worried something bad was causeing this. I started throwing up after i ate and lossing weight rapidly. I lost 80 pounds total. I also started loosing my life and my friends. I never went out because i felt so horrible. After having a colonoscopy and an endiscopy there were thoughts of me having Colitis, and in the end it was worse because it was crohns disease. So many medications i have tried and so many have not even worked. I went through steroids and didnt want to see any one because my face got so big. once off those i felt sick again and we had to find another medication.
At this time i was in a home school program but not getting any work done because i was just to weak for that. The doctor gave me a medication called colocort which was not fun at all. I had to take it as an Enima. After doing this for almost 6 moths i felt better. It gave my system a break and was able to absorb all 5 other medications i was taing.
From here i have fallen back out of remision from this disease many times. Eventually i was well enough to make up all of that work i missed in the beggining of highschool. I was fortunate enough to have the great supposrt of wonderful teacher, my friends, and family to help me graduate on time from high school. I graduated with Honors after all of this adn got to even make a speech at my graduation. From here i thought i had only good things coming my way. i thought my life could only get better from here but it did not get better, it got worse.
i have gotten sick numerous times from here even having to drop out of my first year in collage because it got to stressful and to hard being sick and going to school..............
It is so scary because i do not know if and when it will come back? Everyday i wonder if i will wake up sick and bed riddin once again.
-California (2006)
Melissa
I was diagnosed with Crohn’s disease in the sixth grade. I first knew something was wrong with me when I was always tired, had headaches, intense cramps, stomachaches, and having to frequently use the bathroom. I went through a variety of procedures to figure out what was wrong with me, and through the time of my diagnoses, I was confused, anxious, and in shock with the whole situation. When I heard that I had Crohn’s I had never even heard of this disease before, and being the young, naïve 12-year old that I was, I greatly worried about what I would face in the years ahead. All throughout middle school, I went to every doctor imaginable, it seemed. My parents wanted to “explore their options” so we went from doctor to doctor, trying to determine the best possible medicine and doctor that we could stay with. I was too young to understand everything that was going on with the disease, and all I knew was that while my friends went through normal puberty and grew taller and taller, I lagged behind. I was unusually small for my age because the disease had stunted my growth. Not looking “normal” according to middle school standards, I was often teased and humiliated about my size. I remember walking down the hall one time and one of the teachers coming up to me and telling me that this was “middle school, not elementary school” then laughing and walking away. To me, that was worse than being tired or having cramps all the time; it made me very insecure about myself.
After searching around for doctors though, we finally found one at Duke Hospital and he immediately put me on Prednisone, Imuran, and Pentaza. The Prednisone made me gain weight, especially in my face, but it gave me tons of energy which I was thankful for. After numerous doctors appointments, and being on the Prednisone for a while, I made my way of getting off of the medication. I began to feel better and better and by the time high school rolled around, I was back to living my teenage years. I am still on Imuran and Pentaza and I go up to Duke every few months for a Remicade treatment through an IV infusion, but I am doing a LOT better though and I hardly have any symptoms anymore. My friends and family have been very supportive of me throughout the whole process, which helped me a lot, and my support and encouragement goes out to everybody else who is living with the disease!
-South Carolina (2006)
Janis M
I am the Mother of a Crohns patient. It is the hardest thing I have ever had to go through, watching this horrible disease try to kill her. She is way too tough tho, and never, never, gave up. She has turned a terrible thing into a positive by having this website and trying to help other people.
I am a very proud Mom and I beleive in the term:"What doesnt kill you, makes you stronger". That is so true.
Without my faith in God, I dont think I would have gotten through this time. He is good and He knows what is happening. He has it handled and that is a great relief to me. He knew that Kady was a person who could and would handle this and make a difference.
-California
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